Canton mom raising funds to get seizure dog for daughter
by Kyle Dominy
cherokeetribune.com
May 15, 2011 12:00 AM | 5922 views | 8 8 comments | 7 7 recommendations | email to a friend | print
Victoria Williams, 9, suffers from mitochondrial disease and is affected by sudden seizures. Her family is trying to raise money to purchase a service dog to help detect when Victoria will have the seizures. She colors with her mother, Corey Lowe-Williams, at their home in Canton.<br>Cherokee Tribune/Todd Hull
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CANTON — Victoria Elizabeth Williams appears to be the typical kid.

The 9-year-old enjoys running around outside and watching television.

“Everything looks normal. You can’t tell anything is wrong with her,” said her mother, Corey Lowe-Williams.

But Victoria was born with mitochondrial disease, a condition that affects how the body creates growth and life-sustaining energy.

Because of the disease, Victoria can’t talk and suffers several seizures a day.

“Usually, children with mitochondrial disease aren’t expected to live very long,” Lowe-Williams said. “The doctors told me not to worry about quantity of life but quality of life. That’s hard to hear, but that’s what we’re trying to do for Victoria — improve her quality of life.”

Since the seizures come with no warning and Victoria cannot communicate verbally, she needs near constant contact.

Therefore, Lowe-Williams is striving to get her daughter more assistance through the help of man’s best friend.

Lowe-Williams is raising money to purchase her daughter a seizure dog.

“The seizures are pretty intense,” she said. “The dog can sense and is trained to detect when they are about to happen. Then it will bark and alert me.”

The dog will also serve as a type of GPS, keeping tabs on Victoria’s whereabouts.

“She loves her freedom,” Lowe-Williams said. “She’s big enough now where she can unlock the door and run outside.”

The dog will come from Ohio-based 4 Paws for Ability and comes with a $26,000 price tag.

The family is only responsible for half the cost, $13,000.

So Lowe-Williams, a Clarkston police officer who recently moved to Canton from DeKalb County, is trying to organize a fundraiser to help cover the expense.

But donations have begun rolling in well before a benefit could be put together.

Through the networking website Facebook, more than $6,000 has already been raised.

“There are people I don’t even know who are helping me out,” Lowe-Williams said. “Being a police officer, I see the worst of the worst. This has renewed my faith in human kind.”

Once the funds are raised, the family will have to travel to Ohio to spend two weeks training and learning how to work with the service animals.

Mitochondrial disease has no cure, so doctors can only treat the symptoms.

Lowe-Williams said Victoria has undergone every seizure treatment available in the United States and some not available in the U.S. market.

“Victoria has been on nine different seizure controlling medications, some illegal in the United States because of potential side effects. We had to go to Canada to get them,” she said. “It seems like nothing has worked.”

Victoria also has a Vagal Nerve Stimulator, a device implanted in her chest that stimulates a distinctive nerve when it comes in contact with a magnet, which helps lesson the severity of the seizure.
Comments
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Corey Lowe
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May 24, 2011
I am not sure how to get in contact with you all. I took your suggestion and I create a wepay account so others can donate online.

Feel free to email me at: corw7@aol.com if you have any questions.

Thank you again.
Corey Lowe
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May 24, 2011
Thank you all for your comments, It is hard, everyday but somehow knowing God gave her to me to care for, makes me face the challange evryday. I wish life was different for her but as they say "it is what it is". You can view her Facebook page at: Paws for a Princess. Here is the address to where you send donations: Make check payable to: 4 Paws for Ability 253 Dayton Ave Xenia, OH 45385 Victoria Williams on the memo.

Thanks again,

Corey
Kyley
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May 18, 2011
I have Mitochondrial Disease complex III and so does my twin sister I and III I wish all luck sweetie! If you ever need a good doctor I live here in Atlanta, Georgia and there is a world known doctor. Dr John Shoffner! I know whatr you are going through I was diagnosed at 14 along with my sister and am now 17. good luck never give up hope and keep fighting on.
Jennifer Escalona
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May 16, 2011
I recommend that someone make Victoria an account on WePay.com or Everribbon.com so people can donate online!
anonymous
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May 16, 2011
Although its been 21 years since the death of my son who was alone when he had his seizure and died he was 27. but the pain was deep and is still painful today. I witness his seizures and I have to say it is the most hurtful and devastating thing to see your child having a seizure and medicaly you can't stop it..even when on medication the seizures can still happen. My heart goes out to this little girl.No matter what age when a child goes before the parent is the most painful hurt you can imagine..... May God Bless her and make a way for all the things that she will need. God Bless
Unknown12343
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May 15, 2011
May God bless you and your child. With him all things are possible.
Noel Italo
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May 15, 2011
Could you please provide contact information so that people can help Victoria?
Garry Smithwick
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May 15, 2011
How can people donate?
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